Identity and Deafness:Who Am I ? To Be Visual or Not to Be Visual? The Hard of Hearing Child It Takes a Village to Raise a Deaf Child

 
 

An Australian CODA's Perspective

In debates on controversial matters affecting deaf people, there is a broad spectrum of views expressed, and stories of good, bad and indifferent experiences are recounted.

A major factor governing such discussions tends to be overlooked. That is, different individuals respond according to their diverse personalities and temperaments.

I am the eldest son of profoundly deaf parents and brother of three profoundly deaf and two hearing siblings. Although born with normal hearing, my first language was sign language. But there was no resulting inhibition to acquiring English in which, both spoken and written, I happened to excel at school. This was despite little contact with hearing people, and my next (hearing) brother was born five years after me.

During those early years within the family, I realised that my deaf parents and brothers were different, but never thought of them as abnormal or disabled, and they certainly did not think so. In fact, there was no limitation in our signed communication (private or public) and, hence, I never considered deafness to be a problem. We were a normal family enjoying life as well as the best of the rest.

Having practised medicine for many years, specialising in psychiatry, I have maintained a close social involvement with associations for Deaf and hard-of-hearing adults and children and with members of such communities, always endeavouring to avoid patronising or intrusive roles. My family instilled in me respect for differences and a sense of cautious detachment where others chose alternative life-philosophies to mine.

At the same time, I have followed closely the various discussions concerning education methods, communication systems, and assistive devices enhancing residual hearing or attempting to compensate for none. In all these fields and others which deeply affect and, often, bitterly divide professionals, parents and those with hearing impairment, it is a source of wonderment that "individual variation" is so often overlooked.

I believe a whole range of options ought to be offered, so that individuals and families may make their own informed choices of what may help best. Let there be no arguments over which method or system is best for all. We may be sure that different individuals benefit from one or the other, and examples of excellence may be promoted for each. Try to gauge what may suit each individual from as early detection of deafness as possible, and constantly reassess thereafter. Don't be discouraged by the need to change options from time to time. We are not all the same, and we don't remain the same throughout the early formative years of life.

My parents attended the South Australian School for Deaf Children at the beginning of this century. The Principal was Samuel Johnson whose education method was a "combined system" (articulate speech, natural signs and manual alphabet), although he strongly favoured oral teaching and resigned himself to the realities of deaf children preferring sign. My parents were proficient in sign language and in spoken and written English. I have always believed that children may not be disadvantaged in a bilingual situation, and my parents and their deaf peers are proof of that.

My father was not disadvantaged during the severe depression years of the nineteen-thirties. Unlike so many hearing contemporaries, he was never out of work. If there was no job to be had, he created one, including selling fruit and vegetables door-to-door with a hand trolley! He was always a hard worker and thrifty, and my mother was an excellent home-maker (in an era when such an occupation was universally respected). As a result, they always met their sons' needs, if not always their wants!

As a CODA, I have never felt regret at having been born into and raised within a deaf family - any good traits I have are due to my parents, and the many bad ones are definitely my own! I have never wallowed in "what-might-have-been" self-pity. Be glad to be alive, and think of the majority of the
six billion individuals on this planet who are not so favoured as oneself!