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The
British Deaf Association Policy on Cochlear Implants
Basic
Principles
1. The British Deaf Association
fully supports the rights of adults - either deaf from birth,
or having become deaf - to choose to have cochlear implant
surgery.
2. The BDA also supports
the rights of parents (having received all relevant information
beforehand) to act in the best interests of their deaf children,
and will continue to regard children and adults who use cochlear
implants as members of the Deaf Community.
3. The BDA does not accept
the negative medical model of deafness as a pathological defect
to be cured or eradicated. A successful education and quality
of life is practical without being dependent on verbal language
alone.
Action
PointsIt is the BDAs policy to press for the following urgent
measures:
i. A comprehensive, sustained investigation to
be conducted by qualified independent credible teams of researchers,
to provide information on the long-term effects of cochlear
implants. This should compare children with and without cochlear
implants, providing both with exactly the same financial and
personal support.
ii. Deaf children to be
taught about 'Deafness' and 'hearing' whilst at school and
to be made aware of Deaf culture and the Deaf Community.
iii. The number of Deaf
teachers, Deaf school governors and Deaf inspectors in Deaf
education to increase and immediate discussion to take place
regarding the assessment of an acceptable standard of Sign
Language skills for hearing teachers as part of their training.
iv. All Sign Language
used in schools with deaf children to be of a standard appropriate
for a full education, in order to ensure better opportunities
for those at school, and to ensure proper recognition of the
language.
v. A nationally approved
curriculum for Deaf cultural studies to be developed for Deaf
and hearing schools, together with a nationally recognised
course of study in Sign Language.
vi.
A network of appropriately trained Deaf people to be established
to provide information, advice and support to parents of deaf
children, including information about the life experience
and culture of the British
vii. Sign Language classes
to be readily available for parents of Deaf children, wherever
they live.The BDA recognises that cochlear implant programmes
for deaf children are already widespread. The Association's
policy towards these programmes is:
viii. That deaf people's
views should be sought in developing the Code of Practice
for cochlear implants.
ix. Appropriately trained
Deaf people should contribute to the work of cochlear implant
assessment teams to provide a Deaf perspective*.*Some BDA
members are concerned that, by taking part in assessment teams,
they are seen to support the surgery itself. This is an acutely
felt dilemma., would Deaf people be accepted as equals? Would
their views be respected? This issue has yet to be resolved.
x. Deaf children should
be involved in discussing potential cochlear implantation
where possible. They and their parents should have access
to trained Deaf advocates to provide support and advice and
reflect the needs of Deaf people.
xi. The BDA to consult
with Deaf people with additional needs (e.g. visual impairment)
and their relevant organisations to ascertain their views
on cochlear implants.
xii. Hearing parents of
deaf children to be encouraged to participate in the BDA and
in Deaf Community activities.
The
consensus BDA view is that we are unable to recommend cochlear
implants for children.We will work to ensure that comprehensive,
objective and independent research is carried out, and that
cochlear implant teams ensure that full information on Deafness,
the Deaf Community, Deaf Culture and Sign Language is presented
to parents in an effective way, and that parents are provided
with an understanding of Deaf people's perspectives before
the BDA can reconsider its position.
Deaf
Culture and Community
Many
parents of deaf children, through no fault of their own, view
deafness negatively. They are worried for their children.
How will they grow up? What kind of life can they have? Will
it always be a lonely struggle if their child cannot hear?
The BDA believes it is crucial that parents of deaf children
are quickly made aware of the existence of a Deaf culture
and community which is available to provide information and
support.The CommunityThere are many thousands of people in
the UK who consider themselves members of the Deaf Community,
who share the common experience of being Deaf*, use a shared
language (British Sign Language), and have a shared sense
of identity. Some hearing people, perhaps having relatives
or friends who are Deaf, also see themselves as belonging
to this Community.In many ways this Community is like an ethnic
minority. It does not consider itself as a medical category,
something to be "cured". Indeed, to understand the
issues it is more positive to accept this model rather than
the medical model. A majority of Deaf people feel most at
ease in communicating amongst other Deaf people. They can
use their own language fluently, and without the anxiety of
trying to follow verbal conversations when in fact, lipreading
is mainly guesswork and experience.Sign Language has its own
grammar, structure, and syntax. Deaf people can express themselves
best in this language, feeling at no disadvantage and having
complete confidence that their message is being understood,
and that they themselves fully understand.As with other minority
cultures, there are Deaf sports clubs, drama societies, arts
groups, travel clubs, a broadcasting council, social clubs,
religious, academic and professional societies etc. These
thrive throughout the UK, and throughout the world. The Deaf
World Games are held every four years, the World Federation
of the Deaf Congress takes place every four years, and numerous
international events are held every year. Deaf people are
teachers, psychologists, nursery nurses, car mechanics, computer
programmers, hairdressers, and many other things!*For the
purposes of this paper we have used the convention proposed
by Woodward in 1982, which uses the lower case when referring
to the audiological condition of not hearing and the upper
case Deaf when referring to a particular group of people who
share a Sign Language and culture.The Effects of DeafnessOne
major difference between Deaf culture and ethnic minority
culture is that 90 per cent of deaf children are born into
hearing families. Consequently, it is not surprising that
parents very often aspire for their children to share their
hearing culture as fully as possible. In pursuing this goal,
they may decide that Sign Language and Deaf culture are inappropriate
for their child, and that all their efforts should be directed
to encouraging oral/aural communication.Even when deaf children
acquire a reasonable level of spoken English, and are able
to lip-read well it may often be at the expense of general
educational, social and emotional development. There remains
an inequality in the relative access which Deaf people have
to hearing culture. Deaf culture allows Deaf people to feel
themselves entirely integrated into their own society, rather
than being disadvantaged members of a society which categorises
them in a negative way - concentrating on a sensory deficiency
rather than on shared positive attributes. More importantly,
it also gives them the confidence and maturity to make a choice:
to take part in one or both communities.By attempting to maximise
deaf children's access to hearing culture, cochlear implant
surgery lays an enormous burden of expectation on a child
who may be too young to aid parents who don't know how to
appreciate any distinction between Deaf and hearing cultures.
Parents, teachers and other professionals have to devote tremendous
energies and resources to give a child the maximum chance
of benefiting from the surgery. In the end, the child will
still be deaf, and may have little or nothing more to show
from years of therapy and urgings to understand hearing culture
than being able to identify that a noise is being made - all
at the probable expense of the deaf child's educational and
personal development in the crucial formative years.The ExperienceThe
BDA has grave concerns that implantees may suffer psychological
damage from their failure to live up to unrealistic expectations.
This position is not taken in reaction against hearing culture;
it is based on the painful first-hand experience of many Deaf
people, (including those who are partially deaf) who have
throughout their childhood worn hearing aids, which have contributed
little or nothing to their speech and development, but which
are seen as essential tools in the battle to assimilate Deaf
people into a hearing world*.* This view does not hold throughout
the Deaf Community: as with any democratic group, there are
varying views. Some people, especially those with a degree
of useful hearing, are reliant on hearing aids, even though
they may gain little from them, and are happy to benefit from
whatever access to the hearing world is offered. But they
still choose to retain their primary identity as a Deaf person,
and Sign Language as a first language.It is, therefore, with
a sense of profound relief that Deaf people discover a community
in which this battle has never been waged, and where they
are whole human beings, measuring up to standards which apply
equally to all the community's members. The longer it takes
for Deaf people to find this community, the more likely they
are to suffer feelings of isolation and inadequacy at their
reduced status in a hearing world.The medical profession's
overwhelmingly pathological view of deafness is not shared
by the Deaf Community, which views itself as a linguistic
minority, and takes pride in its distinct language and culture.
It does, obviously, recognise that medically there is a difference
between someone who can hear and someone who cannot. But this
is seen in the healthier, more practical context of a social
model of Deafness.However, the choice at present is between
the high cost and time-consuming process of cochlear implantation,
where Sign Language and access to the Deaf community may be
discouraged, and the other options open to parents, including
a co-operative approach between oral and Sign Language education.
The BDA feels that, even when cochlear implantation takes
place, it is every Deaf child's right to have access to Sign
Language, and to a culture in which it can play a full role
and feel at ease.
Technical
Aspects ofCochlear Implants
Whilst
the BDA believes strongly in the value of the potential support
to be offered to parents by those adults who have a lifetime
experience of being Deaf, it recognises that those who care
for deaf children should have as much information as possible
about the technical aspects of cochlear implants. Historical
Development Instruments designed to make Deaf people hear
have been around for at least 360 years. Beginning with funnels,
and moving on to natural horns and metal trumpets, they became
current in the 18th and l9th centuries, with owners including
Beethoven and Queen Alexandra. Later, 'conversation tubes'
were developed with flexible piping and a flared metal end.These
primitive objects were often hailed as victories: Audigtne-Verrier
Cornet claimed he could 'conquer deafness' in 1885 with a
large metal bell connected to a long fluff-covered tube.In
this century the electronic hearing aid has become internationally
available and used, reaching its present state of development
with the production of a small kidney-shaped receiver worn
behind the ear, connecting to a moulded plastic ear-piece,
and more recently with "in-the ear' type of hearing aid.Cochlear
implant surgery was first carried out in 1957 in Paris by
Dr Eyries, but the implantee discontinued using it after one
year. The first American implantation was made in 1961, followed
in the 1970s by more widespread programmes in France, Britain,
Australia and Austria. By the end of the 1980s, at least 600
children had been implanted, despite deep concern being expressed
by Deaf organisations including the World Federation of the
Deaf.At first, the cochlear implant was a 'single-channel'
transmitter, but by 1990 a '22-channel' transmitter had been
developed, allowing greater differentiation of sounds to the
user. The main group of people to have implants were adults
who had become deaf after acquiring speech and language skills,
and there remains a high degree of unanimity about the beneficial
results of this surgery for this group.In brief, a cochlear
implant is an electrode, or series of electrodes, which stimulates
the auditory nerve. Sound is picked up by a microphone (usually
worn above the ear), passed to a sound processor (kept in
a pocket or hung around the neck), which then passes a tiny
electrical current into the ear. It is this current which
gives the 'sensation' of hearing.The operation on deaf children
has enabled some to gain a sensation of sound, and parents
have noted improvements in their speaking abilities.Cochlear
Implant Teams - Implantation criteriaAll teams contacted by
the BDA state that potential implantees must be checked to
determine whether:
a)
their cochlea has been damaged (by meningitis, for example);
b) their auditory nerve
can still function;
c) they already gain some
hearing from hearing aids. Current policy rules out operations
on people who use hearing aids, since the surgery destroys
all residual hearing;
d) a child has no significant
learning difficulties and is psychologically stable;
e) have the full support
of both parents and teachers.
At
present, teams of surgeons, audiological physicians, paediatric
audiologists, hearing, speech and language therapists, teachers
and social workers for Deaf people, counsellors, psychologists,
physicists and paediatricians co-ordinate to agree whether
an implant for a child should go ahead.The Position of Deaf
peopleSome within the BDA feel that Deaf people should also
play a part in these teams, so that a Deaf point of view can
be available to parents and professionals. They feet it is
particularly important that parents of Deaf children are made
aware of the potential side effects of implant surgery: the
lack of concrete evidence (particularly in social, emotional
and educational areas) of the operation's success with deaf
children, and the potential hazards that may yet appear in
implantees. These include septic infection, damage to the
facial nerve, disorganisation of taste, tinnitus, and the
possible long-term effects of stimulating the brain electronically
with an alien object, quite apart from any psychological effects.Others
are concerned that, by agreeing to take part in the teams,
they are seen to support the surgery itself. This is an acutely
felt dilemma: would Deaf people be accepted as equals? Would
their views be respected? This issue has not yet been resolved.The
BDA would also wish to consider further the implications of
the Children Act 1989, which states that children's wishes
should be taken into account on any decision which affects
their wellbeing. In practice, Local Authorities and other
agencies defer to the wishes of the parents until the child
is of an age where the Gillick principle applies. This principle
stems from the decision of a judge to over-rule the parents
of a 13-year old girl, since it was felt that the girl was
mature and stable enough to decide issues for herself, against
her parents' wishes.In the case of most Deaf children being
considered for implantation, this principle would not apply,
since they are normally aged between two and five years, and
the Gillick principle generally comes into consideration for
teenagers. Even then, courts may not deem Deaf teenagers to
be 'mature and stable enough', due to their lack of understanding
of Deaf people.The question unanswered by the Children Act
is whether it is legally and morally defensible to perform
surgery on a child who is too young to agree to the decision,
even though there is no medical need to do it, and this agreement
would be compulsory at a later age. It remains open to debate
whether cochlear implants are indeed in the best interests
of Deaf children.The BDA will vigorously pursue its policy
towards enabling parents of Deaf children to make a better-informed
decision in such matters. It will continue to advocate in
the strongest possible terms that Deaf people should be involved
in the decision making process.The medical profession, on
the whole, sees deafness as a condition to be 'corrected',
despite the fact that many Deaf people themselves accept their
deafness. Consequently any operation which brings the Deaf
person closer to a hearing state is seen as beneficial. If
cochlear implants can be moved forward in partnership with
Deaf people, then they will stand a greater chance of success
is the theory. There is a danger that, if the role of Deaf
people is neglected, implanted children will find themselves
in a limbo between the Deaf and hearing worlds, with inadequate
support from either, having had expectations of their improved
ability to hear and speak quite falsely raised.There are also
financial considerations in the medical model. Surgical programmes
will only receive funding if the demand for them is apparent,
and consistent. Manufacturers of new drugs, surgical appliances
and instruments are compelled to proclaim the benefits of
their products in order to remain in business. This consideration
already applies at cochlear implant centres in the UK: they
are under instructions to carry out a certain number of operations
per year in order to justify their funding, and are in competition
with one another for potential implantees. This feature should
not be overlooked.Another financial calculation is made by
the manufacturers Cochlear (UK) Limited. If profoundly Deaf
children are enabled to use speech and language - the argument
goes - then the sums of money expended on the operation, the
equipment and the subsequent years of therapy (currently estimated
at around £25,000 per implantee) will be 'recouped'.
The theory is that the Deaf person will be better able to
access services, get and retain employment, and will have
no need of special schools, Sign Language interpreters, video-based
information, or all the other support services which are currently
provided for Deaf people.The BDA believes this calculation
presumes more effectiveness for cochlear implants than can
realistically be expected currently. All agree that the child
will remain Deaf, and (as with 'care in the community') support
services may wither or disappear, but the need for them will
remain; the claim that such an operation will save money long
term, therefore, must be refuted.Cochlear implant surgery
is still in its infancy. The technical capacities of the implant,
and the consequent effects on the implantee are still unknown.The
BDA strongly recommends that more research is carried out
into the subject over a longer period of time before it is
assumed that deaf children will benefit from cochlear implants.
Recent
Investigations
Given
the comparative newness of cochlear implant surgery, there
is little detailed research available on the long-term effects
of implants. The,BDA has, however, commissioned its own reports:
a) A Limited Investigation
into Children with Cochlear Implants, by Doreen Woodford,
March 1994
This
report included findings from interviews with implanted children,
their parents, teachers and relevant professionals.The children
often appeared to enjoy their implants, and could appreciate
some sounds but had not begun to understand speech through
aural means alone. Some had been disappointed that the implant
did not live up to expectations.Parents generally viewed deafness
as a sad deprivation, and saw implants as a means to restore
what is lost. Many were unaware of Deaf Culture and the Deaf
Community, and felt above all that improved hearing would
equal greater happiness for their child. Whilst some were
familiar with the existence of a Deaf community, they continued
to long for 'easy' and 'normal' conversations with their child,
and lay stress on the value of hearing danger signals. (The
BDA has always promoted the use of Sign Language between hearing
parents and Deaf children, as the best way for both to converse
easily and normally. There is also no evidence that Deaf people
are more at risk from cars etc through not hearing them)Some
parents had wished their children to move from signing to
orally-based schools, which had not materialised, and others
felt their younger children were being neglected due to the
concentration of attention on the implanted child. There was
a concern that the high levels of support from professionals
may not be possible, if the numbers of implantees continues
to increase.Some had unrealistic expectations of the implant,
but the majority had been satisfied with it, and felt that
communication had become easier with their child.Teachers
on the whole were committed to making cochlear implants a
success for their pupils, but were discovering tensions where
Sign Language was the prime communication method, since they
were being urged to drop Sign Language for implanted children.
Some were anxious about medical decisions overwhelming educational
ones. They cast doubt on progress seen in children having
been attributable to implants, although many teachers felt
that implants should be carried out at the youngest possible
age, if at all.
The
implant centres agreed that implantees would be able to perceive
sound, but whether this will develop into discrimination of
sounds and perception of speech depends on their own commitment,
and that of their parents. Each centre felt that children
should be in an environment where verbal communication is
emphasised.Centres were concerned that the current level of
funding from Local Authorities and private sources may not
last, and that new centres may open without properly qualified
staff. Another concern is that some schools are poorly equipped
to assess audiological data.The manufacturer of all UK implants,
Cochlear (UK) Limited, refers to a 'lifetime financial obligation'
as an element of the operation.
b)
An Investigation into the Position Regarding Cochlear Implants
in the USA, by Ian Depledge, May 1994
This
report was compiled from interviews with American Deaf and
hearing people who have studied the subject of cochlear implants.It
details the decision of the US Food and Drug Administration
in 1990 to approve the Nucleus 22-channel implant for children
from the age of two years. At that time, some 2000 children
had been implanted with this device worldwide, the majority
in the US. The National Association of the Deaf (NAD), the
BDAs "sister" organisation in the USA, responded
by calling the FDA decision 'unsound scientifically, procedurally
and ethically', and argued that parents of deaf children should
consult Deaf people for advice, rather than relying only on
medical professionals. Crucially, the FDA had failed to consult
Deaf people at all.In an interview with Dr Harlan Lane, distinguished
University Professor at Northeastern University, Dr Lane said
that he did not feel cochlear implants were appropriate for
children who were born profoundly deaf, and his own research
showed that implants do not make spoken language adequately
accessible to these children. Nor do they meet the psychological,
educational and linguistic needs of these children in order
for them to become successful, healthy Deaf adults.Dr Lane
opposes what he sees as experimentation on children, before
proper research has been carried out. He questioned whether
implants do genuinely improve a child's quality of life. He
felt that parents may be disappointed if a cochlear implant
does not deliver its promises.In his paper 'The Cochlear Implant
Controversy', (1994) Dr Lane writes: "There is not a
single published case, after nine years of experimentation
with the multichannel implant and more than a thousand implanted
children, of a single deaf child acquiring oral language with
an implant."He casts doubt on the procedural methods
of cochlear implant teams in the US, who pool results in order
to show an average improvement across several implanted children's
cases. Some of these may be children who became deaf after
the development of spoken language and, therefore, are more
likely to show high readings. Other tests ignore results from
children who show no improvement, he believes, and others
make the goals to be obtained so elementary that they are
of no consequence.Nancy J Bloch, Executive Director at the
National Association of the Deaf, explained her organisation's
attitude in opposing implantation of children under 18 years.
The organisation does not oppose continuing research, and
accepts the right of adults to make a decision to have an
implant themselves. The NAD's principal quarrel is with the
FDA, which took its decision on cochlear implants without
reference to Deaf people themselves. The NAD has research
information on implanted children, showing that 55 out of
75 children (73%) surveyed in Florida had discontinued using
their implant. This figure may be so high due to a lack of
follow-up care and therapy.John K Niparko, an ear surgeon,
said that he believes only 1 % of Deaf people would really
benefit from a cochlear implant.Arthur Roehrig, who is Deaf-blind,
commented that just as blind people prefer to read Braille
at 300 words per minute rather than read blown up words on
a computer screen at a far slower pace, most Deaf people would
prefer to remain Deaf and communicate fluently using Sign
Language rather than trying to hear a limited range of distorted,
artificial sounds.lan Depledge's American study concluded
that by focusing on the ear of a deaf child, implantation
will delay the acquisition of a language and damage the possibility
of a normal childhood; that implantation technology is experimental
and under-researched, and its effects unknown; that it is
ethically improper and morally wrong to carry out invasive
surgery on children who cannot decide for themselves; and
that diversity of culture is a good thing: consequently science
should not be used to transfer a child from a minority group
to the majority group.
Education
As
a result of the BDA's investigations into the situation of
cochlear implants for deaf children, it became clear that
issues relating to the education of all those who are deaf
needed to be examined in much more depth. Many parents had
said that they were considering implants for their children
because current educational provision was not all that they
wished, and the area of education for deaf children was one
which caused the greatest concern to BDA members.In the UK
the educational provision for deaf children varies widely
from area to area. There are specialist schools for children
who are deaf, and others which have partially hearing units.
The educational methods using different forms of communication
include:
Oral teaching (no Sign Language used);
Total Communication
(a combination of BSL, Signed English and speech, lipreading,
reading and writing);
Bilingualism (a child learns British Sign Language, and then - once fluent
- moves on to learn spoken and written English as a second language).
Much
of the collected data shows an alarmingly low reading age.
These worrying statistics, however, mask the true situation:
that Sign Language is the first and preferred means of communicating
for Deaf people, and that the average signing age of Deaf
people is probably in line with their hearing peers' reading
age. Due to insufficient research, there is no means of verifying
this in a statistical report.The BDA is concerned to note
that at present, there is no national requirement for hearing
teachers of deaf children to be assessed for their Sign Language
competence, that there is no nationally recognised school
curriculum for Sign Language and Deaf Cultural Studies, and
that there continue to be few teachers, school governors,
and inspectors who are themselves Deaf. Additionally, parents
who are extremely motivated to learn Sign Language may often
find no classes available to them.The BDA feels it is urgent
that this situation is acknowledged, and that steps are taken
to provide deaf children with access to Sign Language. This
applies equally to children who use cochlear implants. Even
the best estimates (so far unproved) of children's appreciation
of speech and language suggest that this will take several
years to achieve. If, in the meantime, the child also has
no Sign Language input, then their chances of developing linguistic
skills in a broad sense will be radically reduced.Professionals
in cochlear implant teams are already putting pressure on
parents and educational establishments to move away from Sign
Language, if they have previously used this with their child,
or not to begin using Sign Language.The BDA feels this is
misguided advice, and strongly recommends that Sign Language
be encouraged in both the child's home and school life.
The
BDA
Finally,
the question has been asked 'Why should the BDA become involved
in this debate?" To understand, it is important to look
at history.The BDA was founded in 1890 in response to a concerted
international attack on Sign Language. A congress of hearing
educators of deaf children had met in Milan in 1880, and passed
a resolution banning the use of Sign Language in education
throughout the world. Later, a Royal Commission on the education
of deaf (and blind) children confirmed this decision, without
consulting Deaf people themselves.The philosophy behind these
moves was this: that deaf children may be distracted from
learning spoken language if they use Sign Language, and that
deaf children should be assimilated into the hearing world
at all costs. The emphasis was, as now, on the acquisition
of speech rather than language.The magazine Deaf Mute took
up the challenge, urging Deaf people to unite in defense of
their own interests. A National Conference of Adult Deaf and
Dumb Missions and Associations took place in London in 1890,
where a national society was formed, aiming to 'elevate the
education and status of the Deaf and Dumb in the United Kingdom'.This
was the first organisation in the UK which truly represented
the aims and aspirations of Deaf people, rather than the fate
which hearing people decided for them. The British Deaf and
Dumb Association (BDDA) consequently entered a hostile world,
where the majority of educationalists opposed the core belief
of the association, that Sign Language is the obvious language
for Deaf people, being designed for the eye, rather than the
ear.For the next 81 years, the BDDA continued as a wholly
voluntary organisation, representing the interests of its
members by promoting Sign Language and establishing a focus
for Deaf culture in the UK. In 1971, the word 'dumb' was dropped
from the title, since it had clearly negative connotations.
At that time the BDA appointed its first salaried staff, and
became a professionally-run charity, providing a number of
services to the community and promoting its belief in the
fundamental value of Sign Language more widely.The BDA has
an Executive Council made up entirely of Deaf people. All
policy decisions are consequently made by Deaf people, and
an annual meeting of members debates the major issues confronting
the Association using a democratic voting system.To carry
out the members' decisions, the BDA runs departments of Sign
Language Services, Advocacy, Education, Health Promotion,
Information and Marketing and Youth Services. It also runs
an Interpreter Agency and the London Deaf Access Project,
which produces information videos in Sign Language for Deaf
people.In each of these areas Deaf people's interests are
of prime importance, and the BDA takes every care to ensure
that it acts with the full support of its members, as a counterbalance
to the narrow views of some sections of the hearing community,
which seek to impose different standards onto Deaf people.
In 1980, following the BDA congress of that year, the organisation
took a further step forward. It began to mobilise the support
of the hearing community in realising its objectives. That
is, to advance and protect the interests of Deaf people, to
develop pride, identity and leadership qualities and awareness
of rights and responsibilities; to strengthen the Deaf Community
and thereby enable Deaf people to take their place not just
within the Deaf community but as full members of the wider
society.Throughout the 104 years of the BDA's existence, the
debate has continued between those who oppose the use of Sign
Language and those who support it. It remains a debate anchored
in the opposing views of 'normalcy'. Many people still argue
that for Deaf people to fulfil their role as members of a
wider society it is essential for them to conform to the majority
template: to use spoken language, even if they are often left
at a significant disadvantage in trying to do so.It is precisely
because information is denied to Deaf people from aural and
written sources that the work of the BDA is so crucial, and
why Sign Language communication is so highly valued by Deaf
people. This situation will not change in the foreseeable
future, even taking the most optimistic forecasts of cochlear
implant teams into account.In recent years, many areas of
society have changed to accommodate people whose physical
abilities do not match this template. Wheelchair users have
increasing access to public buildings and transport. Ethnic
minorities receive information in their own language. The
BDA's role is now to convince legislators and the general
public that Deaf people have an equal right to such provision,
that British Sign Language is a distinct language, and is
the most effective means for Deaf people to receive information
and to communicate. For linguists, this is not a debate; it
is a scientifically proven fact. But the controversy still
rages.The drive to 'normalise' Deaf people, by increasing
the quantity of sound which can be sensed, carries with it
the danger of alienating the Deaf person from their own self-identity,
and their own natural community and its living language, without
allowing full integration and access to hearing society. It
also raises ethical problems, which have not yet been fully
debated.Equally important, Sign Language is a part of a vibrant
and distinct culture. The BDA knows that greater integration
of Deaf and hearing people is achievable if this language
and culture are recognised and accepted by the hearing world,
and wishes to share its knowledge, expertise and experience
to support in partnership those who care for deaf children.Implanted
children will remain deaf, and are likely to remain cut off
from many aural and written sources of information which hearing
people take for granted, and the need for the work of the
BDA will be as great if not greater - than ever.This report
was based on work of the 'British Deaf Association Cochlear
Implants Working Party'.Working Party Members:Austin Reeves,
Ian Depledge, Liz Scott Gibson with the support of Alan Murray,
Jeff McWhinney and Doreen Woodford.
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